Solve M.E. and Bateman Horne Center co-hosted this webinar series for the benefit of patients and caregivers navigating life with severe ME/CFS.
The third installment in the series focused on the challenges faced by both patients and clinicians, offering insights into strategies, systemic needs, and potential solutions for improving care accessibility.
IMPORTANT LINKS
Resource Guide: https://batemanhornecenter.org/wp-content/uploads/2025/01/Medical-Panel-Resource-Guide.pdf
Slide Deck: https://batemanhornecenter.org/wp-content/uploads/2025/01/Medical-Panel-Slide-Deck.pptx.pdf
Transcript: https://batemanhornecenter.org/wp-content/uploads/2025/01/Severe-ME-Medical-Panel-Transcript.pdf
TIME STAMPS
00:00 Introduction
01:25 Defining severe ME/CFS
03:30 Adapting the clinical approach for severe ME/CFS
12:20 Addressing barriers in severe ME/CFS patient care such as ER visits and procedures
18:34 Ensuring severe ME/CFS patients are treated with dignity and respect
21:15 Approach to working with caregivers and supporting patients without caregivers
29:15 Approach to pediatric patients with severe ME/CFS
34:00 Systemic healthcare changes needed to address severe ME/CFS
38:04 Pacing to prevent severe ME/CFS and pacing for severe ME/CFS
The content provided by Solve M.E. and the Bateman Horne Center in this video is for informational purposes only and does not constitute medical advice. Viewers are encouraged to consult with medical professionals for specific advice tailored to their individual circumstances.
The third installment in the series focused on the challenges faced by both patients and clinicians, offering insights into strategies, systemic needs, and potential solutions for improving care accessibility.
IMPORTANT LINKS
Resource Guide: https://batemanhornecenter.org/wp-content/uploads/2025/01/Medical-Panel-Resource-Guide.pdf
Slide Deck: https://batemanhornecenter.org/wp-content/uploads/2025/01/Medical-Panel-Slide-Deck.pptx.pdf
Transcript: https://batemanhornecenter.org/wp-content/uploads/2025/01/Severe-ME-Medical-Panel-Transcript.pdf
TIME STAMPS
00:00 Introduction
01:25 Defining severe ME/CFS
03:30 Adapting the clinical approach for severe ME/CFS
12:20 Addressing barriers in severe ME/CFS patient care such as ER visits and procedures
18:34 Ensuring severe ME/CFS patients are treated with dignity and respect
21:15 Approach to working with caregivers and supporting patients without caregivers
29:15 Approach to pediatric patients with severe ME/CFS
34:00 Systemic healthcare changes needed to address severe ME/CFS
38:04 Pacing to prevent severe ME/CFS and pacing for severe ME/CFS
The content provided by Solve M.E. and the Bateman Horne Center in this video is for informational purposes only and does not constitute medical advice. Viewers are encouraged to consult with medical professionals for specific advice tailored to their individual circumstances.
- Catégories
- Webinar
- Mots-clés
- ME/CFS, Long COVID, post-infectious chronic conditions
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